Population Health and Health Services (PHHS) Data

Please check back soon for updates to this list. For assistance in accessing these data sets or for the latest details, submit a consultation request.

Questions? Contact us at pophealth@ucsf.edu

Dataset Domain Timeframe Scope Population Sample Size Cost
The California Environmental Health Tracking Program Health status varies across data sources California varies across data sources Various sizes and data sources Free from Source
Bay Area Administrative Data
Dataset Domain Timeframe Scope Population Sample Size Cost
San Francisco Department of Public Health CHN data (THREDS) Health care utilization, outcomes, and health status 1996-2009 San Francisco Community Health Network (CHN) patients Not specified: "various data sources are used, primarily the LCR (Lifetime... Free from Source
Bay Area Registries
Dataset Domain Timeframe Scope Population Sample Size Cost
San Francisco Mammography Registry Cancer data 1995-ongoing San Francisco women who have undergone mammography Since inception, 1.5 million mammograms/371,000 women Fee Required
California Administrative Data
Dataset Domain Timeframe Scope Population Sample Size Cost
AHRQ Quality Indicators for California Health care quality 2005-2009 California California hospital and patient discharge data 2009 data Statewide Prevention QI's- 3,329-73,213 Pediatric QI's-... Free from Source
California (OSHPD) Emergency and Ambulatory data sets Healthcare Utilization 2005-2011 California outpatient encounters 100-450,000 Free at UCSF
California (OSHPD) Home Health Agencies and Hospice Facility Annual Utilization Data Healthcare utilization 2001-2011 California California home health and hospice agencies and utilization Approximately 1600 home health agencies per year Free from Source
California (OSHPD) Hospital Annual Utilization Data Healthcare utilization 2001-2011 California Hospitals in California 483 hospitals Free from Source
California (OSHPD) Hospital Financial Data hospital financial data 2002-2011 California All hospitalizations 300-400 hospitals per year Free from Source
California (OSHPD) Inpatient Discharge Data Health care costs and utilization 1999-2011 California, San Francisco Hospital discharges Approximately 3,600,000 to 3,700,000 Free at UCSF
California (OSHPD) Long-Term Care Facility Annual Utilization Data Healthcare utilization 2001-2011 California California long term care facilities and utilization 1100-1220 long term care facilities per year
California (OSHPD) Primary Care and Specialty Clinics Data Products Healthcare utilization 2001-2011 California California clinics Primary care clinics-553 Specialty care clinics-1032 Free from Source
California Department of Health Care Services (DHCS) data for research and public health claims data Varies California Persons enrolled in Medi-Cal Varies Fee Required
Department of Public Health Vital Statistics Data Files Birth and death data Birth files:1960-2010 (older records available upon request) Death files: 2002-2005 (older records available upon request) California California births and deaths Birth statistical data:~500,000 Death statistical data:~116,000 Free from Source
Medi-Cal Drug Utilization Data drug utilization 1996-2012 California outpatient drug utilization Varies with the volume of prescription claims for Medi-Cal recipients Free from Source
California Registries
Dataset Domain Timeframe Scope Population Sample Size Cost
California Cancer Registry Cancer data 1985-2007 California, San Francisco All cancers diagnosed in California (except basal and squamous cell carcinoma of the skin and carcinoma in situ of the cervix) 2.5 million cases of cancer to date with over 140,000 new cases added annually Free from Source
California Surveys
Dataset Domain Timeframe Scope Population Sample Size Cost
California Health Interview Survey (CHIS) Health risk behaviors and health status 2001, 2003, 2005, 2007, 2009 California, San Francisco Households Approximately 50,000 Free from Source
California Women's Health Survey Health indicators, attitudes,and behaviors 1997-2010 California Randomly selected adult women aged 18 years or older in California. 4000 Free from Source
Census and Other Sources of General Demographic and Socio-economic Data
Dataset Domain Timeframe Scope Population Sample Size Cost
Area Resource File (ARF) Geographic Data Released annually. Most recent file in 2010 National, Multiple States, California, San Francisco national population data 3,140 counties Free at UCSF
Current Population Survey labor force characteristics monthly 1950-2011 National Civilian non-institutional population 16 years and older 60,000 households monthly Free from Source
U.S. Census of Population and Housing Public Use Microdata Samples (PUMS) Population and household characteristics 1980, 1990, 2000 National Housing units 1% and 5% samples of housing units - 14 million persons, over 5 million housing... Free from Source
US census data -- full count - short form (SF1,SF2) Population and household characteristics 1960, 1970, 1980, 1990, 2000, 2010 National, Multiple States, California, San Francisco Housing units 115.9 million housing units and 281.4 million people in 2000. The 2010 Census... Free from Source
US census data -- sample count - long form (SF3, SF4) Population and household characteristics 1960, 1970, 1980, 1990, 2000 National Housing units sample of housing units - generally 1 of 6 housing units (approximately 19.3... Free from Source
National Administrative Data
Dataset Domain Timeframe Scope Population Sample Size Cost
Chronic Condition Data Warehouse (CCW) Chronic health conditions 2000-20010 National Medicare Beneficiaries with Chronic Conditions http://www.ccwdata.org/cs/groups/public/documents/document/wls_ucm1-000773.pdf Fee Required
Health Care Cost and Utilization Project: Kids Inpatient Databases (HCUP-KID) Health care costs and utilization 1997, 2000, 2003, 2006, 2009 National Hospital discharges for individuals under 20 years of age 1997: approximately 2,000,000 2000: approximately 2,300,000 2003 and 2006:... Free at UCSF
Health Care Cost and Utilization Project: Nationwide Emergency Department Sample (HCUP-NEDS) Health care costs and utilization annually since 2006 National Emergency department patients The NEDS contains between 25 and 30 million (unweighted) records for ED visits... Free at UCSF
Health Care Cost and Utilization Project: Nationwide Inpatient Sample (HCUP-NIS) Health care costs and utilization annually 1988-2009 National Hospital discharges 1988: approximately 5,000,000 1989-1992: approximately 6,000,000 1993-1996:... Free at UCSF
Health Care Cost and Utilization Project: State Emergency Department Databases (HCUP-SEDD) Health care costs and utilization annually, 1999 to present National Hospital discharges The SEDD contain the emergency department encounter abstracts in participating... Free at UCSF
Health Care Cost and Utilization Project: State Inpatient Databases (HCUP-SID) Health care costs and utilization annually 1990-2010 National, Multiple States Hospital discharges The SID contain the universe of the inpatient discharge abstracts in... Free at UCSF
Home Health Outcome and Assessment Information Set (OASIS) Health status, functional status, and health service utilization 1999-2009 National Medicare and Medicaid patients (age 18 or over) receiving skilled health services from home health agencies contingent on year Fee Required
Ingenix Claims File Health Care Costs and Utilization 2003-2004 National All persons under the age of 65 with employer-based coverage offered through a set of carriers. ~8 million Fee Required
Long Term Care Minimum Data Set (MDS) Health status 1998-2009 National Residents of long-term care facilities certified to participate in Medicare or Medicaid. need to request Fee Required
Medicaid Research Identifiable Files Health care access, cost, and use 1999-2005 National, Multiple States Medicaid population approximately 55 million Fee Required
Medicare Cost Reports Cost data Hospitals and Health Care Complexes: Fiscal Year 1996- current; Skilled Nursing Facilities: Fiscal Year 1996 - current; Hospices: Fiscal Year 1999 - current; Renal Dialysis Facilities: Fiscal Year 1994 - current; Home Health Agencies: Fiscal Year 1994 - current National Cost reports from hospitals, hospices, renal dialysis facilities, skilled nursing facilities and home health agencies need to request Fee Required
Medicare Inpatient Rehabilitation Facility Patient Assessment Instrument (IRF-PAI) Health status and quality of care 2002-current National Medicare Part A fee-for-service patients who receive services under Part A from an IRF need to request Fee Required
Medicare Research Identifiable Files Health care access, cost, and use 1999-2011 National, Multiple States Medicare population approximately 48 million Fee Required
National Registries
Dataset Domain Timeframe Scope Population Sample Size Cost
Surveillance Epidemiology and End Results (SEER) Public-Use Data Cancer Data 1973-2009 National Cancer cases: population data cancer registries data from population-based cancer registries covering approximately 26 percent... Free from Source
US Mortality Data Mortality 1960-2008 National, Multiple States, California full count of population all US Free from Source
National Surveys Administered by Federal Agencies
Dataset Domain Timeframe Scope Population Sample Size Cost
Behavioral Risk Factor Surveillance System Health Risk Behaviors 1984-2010 National, Multiple States Individuals age 18 years and older up to 355,710 Free from Source
Consumer Assessment of Healthcare Providers and Systems (Medicare CAHPS®); Medicare CAHPS® Data Managed Care Fee-For-Service - 2000-2004; Medicare Advantage - 1998-2005; MA Disenrollment / Reasons - 1998-2005; Combined MA Prescription Drug (MA PD), MA Only, Stand Alone PD, and FFS Only - 2006 Clinician & Group Survey Data-2010 National Performance indicators: managed care health plans need to request Fee Required
Dartmouth Atlas of Healthcare Medicare data provides information and analysis about national, regional, and local markets, as well as hospitals and their affiliated physicians. National Free from Source
Health and Retirement Survey (HRS) Aging and Health Status 1992-2006 National Household residents approximately 22,000 respondents every two year cycle Free from Source
Hispanic Health and Nutrition Examination Survey (HHANES) Health Status 1982-1984 National Hispanics aged 6 months to 74 years of age 11,600 Free from Source
Medical Expenditure Panel Survey (MEPS) Health Care Utilization and Household Characteristics 1996-2010 National Households approximately 21,500 to 37,500 Free from Source
Medicare Current Beneficiary Survey Health Care Access, Cost, and Use 1991-2008 National Medicare population, age groups: <45, 45-64, 65-69, 70-74, 75-79, 80-84, 85+ 16,000 persons are interviewed in each round (3 rounds a year). However,... Fee Required
Medicare Health Outcomes Survey (HOS) Health status and quality improvement 1998-2011 National Medicare beneficiaries Beginning in 1998, and continuing annually, a HOS Baseline Cohort was created... Free from Source
National Ambulatory Medical Care Survey (NAMCS) health care utilization annually from 1973 through 1981, 1985, annually from 1989 through 2011 National physicians In 1975 there were approximately 63,000 patient records sampled from t2,472... Free from Source
National Epidemiological Survey of Alcoholism and Related Conditions (NESARC) Addiction and Health Risk Behaviors 2001-2002 (first wave) and 2004-2005 (second wave) National Household residents 18 and older 43,093 Free from Source
National Health and Aging Trends Study (NHATS) Health risk behaviors and health status 2011 National Medicare beneficiaries age 65 and older Approximately 9000 Free from Source
National Health and Nutrition Examination Survey (NHANES) Health status 1999-2012 National Households Approximately 10,000 annually Free from Source
National Health Interview Survey (NHIS) Longitudinal Health Status 1963-2011 National Households 35,000-40,000 households and 75,000-100,000 individuals annually Free from Source
National Home and Hospice Care Survey health care access, cost, use, and quality 1996, 1998, 2000, and 2007 National home care and hospice agencies and their patients 1996: 1053 agencies 1998: 1088 agencies 2000: 1425 agencies 2007: 1036... Free from Source
National Home Health Aide Survey (NHHAS) health status 2007 National home health aides 3,377 interviews of aides working in agencies providing home health and/or... Free from Source
National Hospital Ambulatory Medical Care Survey (NHAMCS) health care utilization 1973-2010 National emergency and outpatient department visits 71,000 annually Free from Source
National Hospital Discharge Survey (NHDS) This site contains hospital inpatient data and a new survey that integrates inpatient data formerly collected by the NHDS with the emergency department (ED), outpatient department (OPD), and ambulatory surgery center (ASC) data collected by the National Hospital Ambulatory Medical Care Survey (NHAMCS). 1965-2010 National hospital discharge records 270,000 annually Free from Source
National Immunization Survey (NIS) health status 1995-2011 National children ages 19 to 35 months 1995-2011: approximately 25,000-30,000 annually Free from Source
National Longitudinal Alcohol Epidemiology Survey (NLAES) addiction and health risk behaviors 1991-1992 (first wave) National household residents 18 and older not determined Free from Source
National Longitudinal Study of Adolescent Health (Add Health) Health status, characteristics, and risk behaviors Data collected in four waves: 1994-1995, 1996, 2001-2002, and 2007-2008 National Adolescents followed into young adulthood In school sample size was over 90,000. In home sample had a total core sample... Free from Source
National Longitudinal Survey of Youth (NLSY79 and NLSY97) youth economic and social behaviors NLYS79: annually from 1979 until 1994. Bienally 1994-2006. NLSY97: Annually from 1997-2005 National youth, children, young adults NLSY79: approximately 7,500 to 12,500 persons... Free from Source
National Maternal and Infant Health Survey (NMIHS) maternal and child health 1988 and 1991 National Infants 9,935 birth certificates, 5,332 infant death certificates, and 3,309 fetal... Free from Source
National Nursing Assistant Survey (NNAS) health status 2004 National nursing assistants working in nursing homes 3017 Free from Source
National Nursing Home Survey (NNHS) health care utilization and health status 1995, 1997, 1999, 2004 National nursing homes 1995: 1409 facilities and 8056 residents 1997: 1406 facilities and 8138... Free from Source
National School-Based Youth Risk Behavior Survey (YRBS) Health risk behaviors 1990, 1991, 1993, 1995, 1997, 1999, 2001, 2003, 2005, 2007, 2011 National High school students approximately 10,000 to 16,000 persons Free from Source
National Survey of Ambulatory Surgery (NSAS) Health Status (surgical procedures) first conducted from 1994 to 1996, but it was discontinued; conducted again in 2006 National hospitals and freestanding ambulatory surgery centers 1994: 368 facilities 2006: 586 facilities Free from Source
National Survey of Child and Adolescent Well-being NSCAW is the first national study that examines child and family well-being outcomes in detail and seeks to relate those outcomes to their experience with the child welfare system. The NSCAW I and II studies have been carried out over a 12-year period since September 1997. The current contract extends work through September 2011. National children who were involved in an investigation of child abuse or neglect; children and their families were followed for approximately seven years after the index investigation The first cohort: 6,200+ children and adolescents located in 92 primary... Free from Source
National Survey of Children with Special Health Care Needs Children's health 2000-2001, 2005-2006 and 2009-2010 National Children aged 0-17 2000-2001: 750 CSHCN (children with special health care needs) and at least... Free from Source
National Survey of Children's Health Children's Health 2003-2004 and 2007-2008 National Children aged 0-17 2003-2004:102,353 children 2007-2008: 91,642 children Free from Source
National Survey of Family Growth Health Status 1973, 1976, 1982, 1988, 1995, 2002, 2006-2010 National Women aged 15-44 years (except in 2002 men were surveyed) 2006-2010: 22,682; 2002: 12,571; 1995: 10,847; 1988: 8450; 1982: 8,611; 1973:... Free from Source
National Survey of Residential Care Facilities 2010 National Of over 39,000, representing the universe of US residential care service... Free from Source
National Survey on Drug Use and Health (NSDUH) Addiction and health risk behaviors 1994 through 2010 National civilian, non-institutionalized population aged 12 years old or older 1994,1995,1996: approximately 18,000; 1997 and 1998: approximately 25,000;... Free from Source
Survey of Income and Program Participation The main objective of the SIPP is to provide accurate and comprehensive information about the income of American individuals and households and the participation of these people in income transfer programs. The SIPP sample is a multistage-stratified sample of the US civilian noninstitutionalized population; respondents are all household members 15 years or older. 14,000 to 37,000 Free from Source
The Third National Health and Nutrition Examination Survey (NHANES III) Health Status 1988-1994 National Households 34,000 individuals. 6 year-survey cycle Free from Source
Other
Dataset Domain Timeframe Scope Population Sample Size Cost
Inter-University Consortium for Political and Social Research Free at UCSF
Long-term Care: Facts on Care in the US The website brings together data that characterize the policy environment and local market forces affecting nursing home providers. National Free at UCSF
Marketscan Research Databases Integrated patient data (inpatient, outpatient, drug, lab, health and productivity management, health risk assessment, and benefit design) from commercial, Medicare supplemental and Medicaid populations Fee Required
Veterans Health Administration clinical data (including diagnoses, labs, medications, vital status) 1990-present National US Veterans 8 million people Free from Source
Other National Surveys
Dataset Domain Timeframe Scope Population Sample Size Cost
American Hospital Association (AHA) Annual Survey Database Health care cost and utilization Annually 1980-2014 National, Multiple States Hospitals Approximately 6,000 hospitals Free at UCSF
Community Tracking Study -- Household Survey Health care access, cost, use, and quality 1996-97, 1998-99, 2000-01, 2003, and 2007 National Households 1996-97, 1998-99, 2000-01, 2002-2003: 25,000 to 33,000 families and 47,000 to... Free from Source
Community Tracking Study -- Employer Survey Health care access, cost, use, and quality 1996-1997 National Employers approximately 22,000 private and public employers (including those that did not... Free from Source
Community Tracking Study--Physician Survey Health care access, cost, use, and quality 1996-97, 1998-99, 2000-01, and 2004-05 National Physicians 1996-97, 1998-99, 2000-01: approximately 12,000 practicing physicians 2004-... Free from Source
HSC Health Tracking Physician Survey Health care access, cost, use, and quality 2008 National Physicians approximately 4,700 physicians Free from Source
National Survey of America's Families (NSAF) Household characteristics 1997, 1999, 2002 Multiple States Households 1997: 1,163 households 1999: 1,486 households 2002: 578 households Free from Source
The Robert Wood Johnson Foundation Employer Health Insurance Survey Health care access, cost 1993-1994 National Firms and Health plans 22,890 firms Free from Source
The Robert Wood Johnson Foundation Family Health Insurance Survey Health care access, cost 1993-1994 Multiple States Civilians 62,549 families Free from Source