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Israel, B. Community-Based Participatory Research: A Partnership Approach to Address Health Disparities, presented at the NIH Health Disparities Seminar Series, August 13, 2009. View videocast
Improving Health WITH Communities: The Role of Community Engagement in Clinical and Translational Research NCRR e-Newsletter, May, 2009. View videocast.
Columbia University Libraries/Information Services, Scholarly Communication Program, Open Science: Good for Research, Good for Researchers? Presented at Columbia University, February 19, 2009. View YouTube videocast.
Green, L. If We Want More Evidence-Based Practice, We need More Practice-Based Evidence, presented at the NIH Wednesday Lecture Series, January 16, 2008. View videocast.
Tools for Best Practice of Community-Engaged Research
- Review Criteria and Rating Scale for Community-Based Participatory Research
These review criteria and this rating scale can help research partners gain perspective on a research idea and guide their thinking and project planning for projects. The first part of this document lists review criteria for community-based participatory research proposals. The second part applies a 5-point rating scale to these criteria to help researchers and their partners discern the degree to which their project design is participatory and action-oriented.
A Guide to Researcher and Knowledge-User Collaboration in Health Research 2009, Participatory Research at McGill (PRAM), Canadian Institutes of Health Research
This learning module leads those engaged in research—researchers and knowledge users alike—through many of the key issues that should be considered when taking an integrated approach to creating knowledge and translating it to action. "Knowledge users," or those making use of the research results, can include other researchers, defined communities, health professionals, health organizations and institutions, policy makers, industry, the media and the general public.
This learning module has been created primarily with a researcher audience in mind, but care has been taken throughout to ensure that the language and content is meaningful and accessible to non-academics looking for guidance.
This Innovations Exchange page was created to promote healthy patients, families, and communities by providing resources on how to better integrate the delivery of clinical and community-based prevention and health promotion interventions. Learn how other organizations developed and implemented innovative integrated programs, find tools to assist developing linkages and share your experiences and lessons learned.
This manual, a joint effort between the Collaborative Studies of Long-Term Care based at the University of North Carolina at Chapel Hill (UNC) and the Center for Excellence in Assisted Living (CEAL), serves as a "how-to" resource for researchers, practitioners, advocates, policy makers, and community members interested in the use of community-based participatory research (CBPR) to inform practice and policy. The manual explains the principles and methods of CBPR gleaned from experts across the country, and illustrates these points with examples from the CEAL-UNC medication administration collaborative research project.
The Yale Center for Clinical Investigation has published a set of principles and guidelines for community-university research partnerships. This document examines the roles of the university as well as the community in a research partnership. Ethical principles for university-community research partnerships are established and strategies in applying these principles are discussed.
Center for AIDS Prevention Studies Research Portfolio 2009. San Francisco, CA: UCSF Center for AIDS Prevention Studies (CAPS) Technology & Information Exchange (TIE) CORE. View the Portfolio
CAPS is a research center funded by the National Institutes of Mental Health. This Portfolio contains descriptions of 67 of the research studies conducted at CAPS. These are studies that are in process or have recently ended and may not yet have scientific results. Therefore, inclusion in this Portfolio does not imply that any intervention or other studies have been proven effective.
In this Portfolio you will find:
- Table of contents listing research by population
- List of researchers and their projects
- Descriptions of each research project
- Index of research by keyword
To contact a researcher listed here or for comments or questions about the Research Portfolio, contact Carolyn Hunt at 415/597-9110 or e-mail CAPS.Web@ucsf.edu.
CCBR is a leader in the field of community development through research. The publications and resources section of their website provides a rich resource library including manuals, project reports, books, DVDs and academic journal articles.
The new website for Community-Based Research Canada and the Global Alliance for Community-Engaged Research is now live. This website has information on community engaged research in Canada as well as news, videos and links to other community engaged resources.
This website offers tools and resources from a national nonprofit organization that promotes health (broadly defined) through partnerships between communities and higher educational institutions. See the CCPH's Resources for Community-Engaged Scholarship for a list of resources, tools, and guides for Community-Engaged Scholarship.
The Community Genetics Forum is an engagement project sponsored by the NHGRI at the National Institutes of Health. The Community Genetics Forum is focused on developing partnerships between the NHGRI, a host organization, and community-based organizations. It culminates in a single or multiple day public forum event, centered on topics related to genomics that are of interest to the communities involved in its planning. Community reports from past Community Genetics Forums are available on the website.
The CDC developed a Community Guide to Preventive Services, a free online resource to help service planners and providers choose programs and policies to improve health and prevent disease in their communities. Over 200 interventions were systematically reviewed and the Task Force on Community Preventive Services has issued recommendations on their findings.
Founded in 2004, ENACCT's mission is to identify, implement and validate innovative community centered approaches to cancer clinical trials education. They provide consultations and trainings services to community leaders and cancer center staff members as well as numerous programs to increase education around cancer clinical trials.
Good Clinical Research tip sheet (PDF 170MB) from UCSF's Committee on Human Research.
New Routes to Community Health is a new approach for improving the health of immigrants through immigrant-created media. Eight diverse immigrant-led collaborations across the United States have received three-year grants from New Routes to create locally-focused media and outreach campaigns that speak directly to immigrants’ health concerns. This website has examples of previous multimedia projects, and provides resources on building community, developing ruitful partnerships and producing good media.
This site is an online resource on the open access (OA) movement with a focus on peer-reviewed research articles and their preprints. Recently faculty voted in favor of strong OA mandates at Boston University, the Harvard Faculty of Arts and Sciences, Harvard Law School, Harvard Kennedy School of Government, Stanford School of Education, Oregon State University Library, and MIT.
PRIM&R, a national professional development organization for Institutional Review Boards (IRBs) and others interested in advancing ethical research, started a blog in November 2008 on the topic of ethics of community-engaged research. Read the blog listings and post your comments.
RE-AIM is a systematic way for researchers, practitioners, and policy makers to evaluate health behavior interventions. It can be used to estimate the potential impact of interventions on public health. This website provides an introduction and RE-AIM resources for academic researchers and community leaders. View RE-AIM Bibliography (PDF 317KB)
Increasingly, the success or failure of modern medicine is dependent on individual engagement in informed health care decisions. Users can find resources on becoming an informed patient including "Resources for the Prepared Patient: Is This Good Science?" which offers information for patients on evaluating scientific studies, trusting internet research, understanding clinical studies, interpreting health news, and the meaning of "risk" numbers.
In this two-page must read, learn what all reviewers, and CBPR reviewers in particular, don't want to see in a proposal; explore strategies and ideas for strengthening your proposal; and stay on top of CBPR funding opportunities. This resources was produced by Community-Campus Partnerships for Health at the University of Washington.
This website provides a platform for multicultural dialogue and action research and promotes involvement in participatory action research. Through a network of faculty, students and community activists they have created a portal for sharing ideas and inspiration.
This website provides an evidence-based resource for policy makers, practitioners, and others working to prevent violence. It includes a searchable data base of abstracts from published studies that measure the effectiveness of interventions to prevent child abuse, elder abuse, intimate partner violence, sexual violence and youth violence; key publications and resources on violence and its prevention; news and updates from the field of violence prevention; and links to relevant organizations.
Templates for Documents Used in Community-Engaged Research
The Community Engagement Program is collecting and making available model Memoranda of Understanding (MOUs) and agreements between academic researchers and clinical partner sites to serve as models for new projects. Templates and examples are posted here as they become available. All identifying information has been deleted. To contribute your MOUs to this resource area, please email Paula Fleisher, CE Navigator.
- Clinical MOU Template 1 (PDF 87KB)
- Clinical MOU Template 2 (PDF 76KB)
- Clinical MOU Template 3 (PDF 74KB)
- Asian Health Services Collaboration Questionnaire (PDF 52KB)