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UCSF's Comparative Effectiveness Large Dataset Analysis Core (CELDAC) has built a dataset inventory with a guided search feature to help you find the best local and national health datasets for your project.
Agency for Healthcare Research and Quality (AHRQ) offers robust data sources to researchers, clinicians, purchasers, policymakers, and consumers. Topics include accessibility of care, health care disparities, health care provided to low-income and other vulnerable populations, health care quality, health care spending, and use of health care services.
Inter-University Consortium for Political and Social Research (ISPCR) provides over 500,000 data sets from social science research studies. Topics include gerontology, public health, medical care, substance abuse, and mental health. Some components of select data sets can be analyzed online. UCSF Access
International Society for Pharmacoeconomics and Outcomes Research (ISPOR) maintains an inventory of health care data sets from over 30 countries. The digest is grouped by country and allows key word searches and searches by type of data set.
Office of Statewide Health Planning and Development (OSHPD), Healthcare Information Division has a number of data products available. OSHPD patient-level data is available to qualified researchers at non-profit educational institutions conducting approved research.
California Death Registry data (2005 forward, updated quarterly) are available for research use via UCSF's Clinical Data Warehouse. Request from data.ucsf.edu
2010 Health 2.0 Developer Challenge with support from the Department of Health and Human Services (DHHS), is providing a series of events in which developers and challengers (an individual, company, non-profit, government agency, academic center, community with a problem provides the inspiration) work together to develop applications. Data aggregators are invited to contribute data sets and other information sources. Developers are invited to build new tools and applications or enhance existing ones.
CTSI has organized a group of UCSF faculty interested in comparative effectiveness research (CER). Faculty are invited to sign up for email notifications of funding opportunities and potential collaborations.
Community Health Data Initiative (CHDI) is a public-private collaboration encouraging innovators to utilize data made publicly available by the DHHS, to develop applications that will help raise awareness of community health performance, spark action to improve performance, and empower individuals and communities to make informed choices about their health.
Methods and Select Publications
From KaiserEDU.org, Tutorial: Conducting Research with Online Query Tools provides an overview of useful health policy data sources and explains how to use three online query tools (Behavioral Risk Factor Surveillance System, Medical Expenditure Panel Survey, Demographic and Health Surveys) to analyze data and answer basic questions about health care and health policy.
- Size of treatment effects and their importance to clinical research and practice. Kraemer HC, Kupfer DJ. Biol Psychiatry. 2006 Jun 1;59(11):990-6. Epub 2005 Dec 20. PMID: 16368078
- Probabilistic index: an intuitive non-parametric approach to measuring the size of treatment effects. Acion L, Peterson JJ, Temple S, Arndt S. Stat Med. 2006 Feb 28;25(4):591-602. Erratum in: Stat Med. 2007 Aug 15;26(18):3524. PMID: 16143965
- Moderators of treatment outcomes: clinical, research, and policy importance. Kraemer HC, Frank E, Kupfer DJ. JAMA. 2006 Sep 13;296(10):1286-9. No abstract available. PMID: 16968853
- How do risk factors work together? Mediators, moderators, and independent, overlapping, and proxy risk factors. Kraemer HC, Stice E, Kazdin A, Offord D, Kupfer D. Am J Psychiatry. 2001 Jun;158(6):848-56. Review. PMID: 11384888
Pragmatic Cohort Studies
- Risk of death associated with the use of conventional versus atypical antipsychotic drugs among elderly patients. Schneeweiss S, Setoguchi S, Brookhart A, Dormuth C, Wang PS. CMAJ. 2007 Feb 27;176(5):627-32. Erratum in: CMAJ. 2007 May 22;176(11):1613. PMID: 17325327
- Variation in the risk of suicide attempts and completed suicides by antidepressant agent in adults: a propensity score-adjusted analysis of 9 years' data. Schneeweiss S, Patrick AR, Solomon DH, Mehta J, Dormuth C, Miller M, Lee JC, Wang PS. Arch Gen Psychiatry. 2010 May;67(5):497-506. PMID: 20439831
- A pragmatic-explanatory continuum indicator summary (PRECIS): a tool to help trial designers. Thorpe KE, Zwarenstein M, Oxman AD, Treweek S, Furberg CD, Altman DG, Tunis S, Bergel E, Harvey I, Magid DJ, Chalkidou K. CMAJ. 2009 May 12;180(10):E47-57. Epub 2009 Apr 16. No abstract available. PMID: 19372436
- Rethinking pragmatic randomised controlled trials: introducing the "cohort multiple randomised controlled trial" design. Relton C, Torgerson D, O'Cathain A, Nicholl J. School for Health and Related Research, University of Sheffield, Sheffield. email@example.com PMID: 20304934
- Improving the reporting of pragmatic trials: an extension of the CONSORT statement. Zwarenstein M, Treweek S, Gagnier JJ, Altman DG, Tunis S, Haynes B, Oxman AD, Moher D; CONSORT group; Pragmatic Trials in Healthcare (Practihc) group. BMJ. 2008 Nov 11;337:a2390. PMID: 19001484
New User Designs
- Evaluating medication effects outside of clinical trials: new-user designs. Ray WA. Am J Epidemiol. 2003 Nov 1;158(9):915-20. PMID: 14585769
- Increasing levels of restriction in pharmacoepidemiologic database studies of elderly and comparison with randomized trial results. Schneeweiss S, Patrick AR, Stürmer T, Brookhart MA, Avorn J, Maclure M, Rothman KJ, Glynn RJ. Med Care. 2007 Oct;45(10 Supl 2):S131-42. PMID: 17909372
- Moderators, mediators, and other predictors of risperidone response in children with autistic disorder and irritability. Arnold LE, Farmer C, Kraemer HC, Davies M, Witwer A, Chuang S, DiSilvestro R, McDougle CJ, McCracken J, Vitiello B, Aman MG, Scahill L, Posey DJ, Swiezy NB. J Child Adolesc Psychopharmacol. 2010 Apr;20(2):83-93. PMID: 20415603
- Genetic and environmental interactions determine seizure susceptibility in epileptic EL mice. Todorova MT, Mantis JG, Le M, Kim CY, Seyfried TN. Genes Brain Behav. 2006 Oct;5(7):518-27. PMID: 17010098
Summaries of Purpose
- Comparative effectiveness research: a report from the Institute of Medicine. Sox HC, Greenfield S. Ann Intern Med. 2009 Aug 4;151(3):203-5. Epub 2009 Jun 30. PMID: 19567618
- Comparative-effectiveness research—implications of the Federal Coordinating Council's report. Conway PH, Clancy C. N Engl J Med. 2009 Jul 23;361(4):328-30. Epub 2009 Jun 30. PMID: 19567829
Academy Health offers seminars on health services research methods that are aimed at audiences with various levels of methodological experience. Offerings include online seminars as well as methods sessions and seminars held in conjunction with the organization's annual research meeting.
ICPSR Summer Program in Quantitative Methods of Social Research Lectures and workshops on research design, quantitative reasoning, statistical methods, and data processing are presented in two four-week sessions. Instruction emphasizes integration of quantitative analysis methods within a context of substantive social research and is grounded in interactive, participatory data-analysis utilizing high-end, networked microcomputers.
Research Data Assistance Center (ResDAC) assists academic, government, and non-profit researchers using Medicare and/or Medicaid data for their research. Workshops across the United States address strengths and limitations of CMS databases and how claims data may be used to address important health care issues. ResDAC offers online training and tutorials and a national outreach program of meetings, exhibits, and presentations facilitated by experts.
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