Additional Dataset Resources

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Dataset Inventories

UCSF's Comparative Effectiveness Large Dataset Analysis Core (CELDAC) has built a dataset inventory with a guided search feature to help you find the best local and national health datasets for your project.

Agency for Healthcare Research and Quality (AHRQ) offers robust data sources to researchers, clinicians, purchasers, policymakers, and consumers. Topics include accessibility of care, health care disparities, health care provided to low-income and other vulnerable populations, health care quality, health care spending, and use of health care services.

Inter-University Consortium for Political and Social Research (ISPCR) provides over 500,000 data sets from social science research studies. Topics include gerontology, public health, medical care, substance abuse, and mental health. Some components of select data sets can be analyzed online. UCSF Access

International Society for Pharmacoeconomics and Outcomes Research (ISPOR) maintains an inventory of health care data sets from over 30 countries. The digest is grouped by country and allows key word searches and searches by type of data set.

Office of Statewide Health Planning and Development (OSHPD), Healthcare Information Division has a number of data products available. OSHPD patient-level data is available to qualified researchers at non-profit educational institutions conducting approved research.

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Funding Opportunities

2010 Health 2.0 Developer Challenge with support from the Department of Health and Human Services (DHHS), is providing a series of events in which developers and challengers (an individual, company, non-profit, government agency, academic center, community with a problem provides the inspiration) work together to develop applications. Data aggregators are invited to contribute data sets and other information sources. Developers are invited to build new tools and applications or enhance existing ones.

CTSI has organized a group of UCSF faculty interested in comparative effectiveness research (CER). Faculty are invited to sign up for email notifications of funding opportunities and potential collaborations.

Community Health Data Initiative (CHDI) is a public-private collaboration encouraging innovators to utilize data made publicly available by the DHHS, to develop applications that will help raise awareness of community health performance, spark action to improve performance, and empower individuals and communities to make informed choices about their health.

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Methods and Select Publications

From KaiserEDU.org, Tutorial: Conducting Research with Online Query Tools provides an overview of useful health policy data sources and explains how to use three online query tools (Behavioral Risk Factor Surveillance System, Medical Expenditure Panel Survey, Demographic and Health Surveys) to analyze data and answer basic questions about health care and health policy.

General

Pragmatic Cohort Studies

Pragmatic Trials

New User Designs

Examples

Summaries of Purpose

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Training Opportunities

Academy Health offers seminars on health services research methods that are aimed at audiences with various levels of methodological experience. Offerings include online seminars as well as methods sessions and seminars held in conjunction with the organization's annual research meeting.

ICPSR Summer Program in Quantitative Methods of Social Research Lectures and workshops on research design, quantitative reasoning, statistical methods, and data processing are presented in two four-week sessions. Instruction emphasizes integration of quantitative analysis methods within a context of substantive social research and is grounded in interactive, participatory data-analysis utilizing high-end, networked microcomputers.

Research Data Assistance Center (ResDAC) assists academic, government, and non-profit researchers using Medicare and/or Medicaid data for their research. Workshops across the United States address strengths and limitations of CMS databases and how claims data may be used to address important health care issues. ResDAC offers online training and tutorials and a national outreach program of meetings, exhibits, and presentations facilitated by experts.

Find additional Training Opportunities

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